KCA Blog
A Day in the Life of a Family Facing Pediatric Cancer
| March 6, 2025
From cheering Ashton on at softball games to suddenly spending long hours in the hospital for T-cell Acute Lymphoblastic Leukemia treatments, this is a glimpse into the world of a family navigating the challenges and triumphs of pediatric cancer with hope, strength, and the spirit of their eleven-year-old fighter.
7:00 AM – The day starts early for me (Mom) and Ashton. We’ve had a rough night. Ashton wasn’t feeling well and struggled to sleep. I’ve put my job on hold to focus solely on caring for her during this time. That’s where I’m needed most. As we drive to Kentucky Children’s Hospital for her treatment, Ashton rests in the car, trying to catch up on sleep.
8:00 AM – It’s time for chemo. Today, Ashton needs port access, so we rely on the incredible child life specialist, Sydney, who makes this part of the process easier for her. She is there to offer emotional support, hold her hand, and make sure Ashton feels comforted and safe. Her kindness means everything to both of us.
8:45 AM – After the port is accessed, Ashton tries to nap again. It’s important for her to stay as calm and comfortable as possible, and the staff here always go above and beyond to make that happen.
10:30 AM – The student volunteers arrive. Ashton looks forward to their visits; they play games and help keep her distracted from her treatment. Their efforts to make her smile mean so much during such a tough time.
11:30 AM – Lunch arrives, brought to us by Kids Cancer Alliance. A thoughtful, warm meal and a treat are just what we need to break up the day. It’s small moments like this that bring comfort and make our day a little bit easier.
12:30 PM – After lunch, Ashton rests again. The staff here are not only skilled but incredibly compassionate. They check in often, chat with us, and remind us that we’re not alone in this journey. It’s the little things that make a huge difference when you’re in the middle of a long day of treatment.
3:30 PM – Ashton wakes up from her nap, and we spend the rest of the afternoon watching a movie.
5:00 PM – Chemo is finally finished for the day. We pack up and head home to spend time with Dad and brother. Every time we leave the hospital, it’s a mix of exhaustion and relief. Today, though, we leave with an extra bit of hope in our hearts.
Update: Ashton is now cancer-free and her port is removed! We are currently on monthly lab checks. Our advice to other families: Take the good days and run with them. Don’t dwell on the tough ones. Live life fully, and always keep faith. – Lydia, Ashton’s mom